Sick and Tired of Being Sick and Tired

Strategies and alternatives for coping with fibromyalgia, bipolar disorder and other chronic illnesses

Posts Tagged ‘Rheumatoid Arthritis’

How are You? How Do You Answer the Hardest Question Ever When You Live with Chronic Illness?

Posted by wendyburnett on May 20, 2010

I think we all hate that question when it’s asked by “normals.” Unless it’s someone you know well, you never know whether to tell the truth (I feel like shit, thanks for asking.) or lie (Fine, how are you?)
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Posted in Chronic Illness, Fibro, Fibromyalgia, Invisible Illness, Opinion, Pain | Tagged: , , , , , , , , , , , , , , , , | 9 Comments »

What does a “good” day look like to you?

Posted by wendyburnett on May 17, 2010

My definition

My personal idea of a good day is one where I don’t have to go to work, and I can spend some time just doing things that make me feel better. It does NOT mean that I’m not in pain (I haven’t had a day when the pain levels were below a 4 or 5 on the pain scale in at least 5 years.) It also doesn’t mean I’m not exhausted, or that I can actually remember all the things I need to take care of without lists, notes and reminders from the people around me.

What it does mean is that the pain levels are at a 6 or below, and that I can lay down with the hot pads when I need to, or take a nap. Read the rest of this entry »

Posted in Chronic Illness, Fibro, Fibromyalgia, Invisible Illness, Opinion, Pain, Personal care | Tagged: , , , , , , , , , , , , , | 4 Comments »

Are Well-Meaning Friends/Family Driving You Crazy?

Posted by wendyburnett on April 12, 2010

We’ve all been there – many of us deal with it every day . . . the well-meaning friend or family member who comes running every time there’s a new pill or treatment available for our chronic illness. We know they just want to “help” us get better, but it’s crazy-making to constantly be bombarded with new things to try. It’s especially bad when we try the wonderful new treatment, and it DOESN’T WORK! Then we get to deal with their disappointment and questions about, “Are you sure you’re doing it right?” or “Did the doctor give you a strong enough dosage?”

Healthy people mostly only have experience with things like colds, flu, and infections; with maybe a few injuries thrown in. For simple stuff like this, it’s easy — take a few pills for the symptoms of the cold or flu, and in a week or so, it’s gone; take an antibiotic for about 10 days, and the infection is CURED. Injuries involve some down time for healing, and maybe a little physical therapy, and everything is back to normal. Because this is all the experience they have with illness, they assume that ALL illness is like that.

I call it “the antibiotic theory of chronic illness.” Read the rest of this entry »

Posted in Alternative Treatments, Bipolar Disorder, Chronic Illness, Fibro, Fibromyalgia, Health, Healthcare, Invisible Illness, Opinion | Tagged: , , , , , , , , , , , , , , | 7 Comments »