Sick and Tired of Being Sick and Tired

Strategies and alternatives for coping with fibromyalgia, bipolar disorder and other chronic illnesses

Posts Tagged ‘coping’

ChronicBabe Blog Carnival #5: Favorite Self-Care Tools and Techniques is Live!

Posted by wendyburnett on June 3, 2010


The newest ChronicBabe carnival is up! Nineteen different posts give you a wide range of options to try, and the ladies who wrote the posts know what they’re talking about – they all live with this stuff 24/7. Wander on over and find something new to help you feel better.

Posted in Alternative Treatments, Chronic Illness, coping skills, Fibro, Fibromyalgia, Health, Invisible Illness, Pain, Personal care, Stress | Tagged: , , , , , , , , , , , , | Leave a Comment »

My Chronic Illness Journey – The Trip I Never Expected (or WANTED) to Take

Posted by wendyburnett on June 1, 2010

Chronic illness is a life-changing experience for everyone, and each person’s journey is very different; but there are experiences we all recognize as well. How many of us have lost jobs, friends, spouses, homes, and family members to our disease? No matter what illness we have, we share so much that we can connect on a level that many will never understand unless the journey comes to them. We share symptoms, and losses, and lessons; and we share the understanding that our lives will never be the same because the illness, the journey, has changed us in ways that can never be undone. Even if we were to wake up tomorrow and be healthy again, even if by some miracle we were cured; the experience has changed us in fundamental ways, and the lessons it has taught us can never be unlearned.

My journey began many years ago, and it has changed my life so much that when I look back I barely recognize the woman I was. I was married, and miserable, and convinced that I was too stupid to ever be able to take care of myself without a man to tell me what I thought, what I wanted, and what I felt. I was depressed and suicidal, dissociative, and having flashbacks that I thought were delusions or hallucinations. I was terrified that I was losing my mind, and more terrified to tell anyone what was happening for fear that I really WAS “going crazy.”

I can pinpoint the exact moment that my journey through illness began, too. Not with a time or a date, but with an event; an event so ordinary, so innocuous, that I could never have suspected the effect it would have on my life. Continue reading My Chronic Illness Journey – The Trip I Never Expected (or WANTED) to Take

Posted in Chronic Illness, Fibro, Fibromyalgia, Health, Invisible Illness, Pain | Tagged: , , , , , , | 1 Comment »

What does a “good” day look like to you?

Posted by wendyburnett on May 17, 2010

My definition

My personal idea of a good day is one where I don’t have to go to work, and I can spend some time just doing things that make me feel better. It does NOT mean that I’m not in pain (I haven’t had a day when the pain levels were below a 4 or 5 on the pain scale in at least 5 years.) It also doesn’t mean I’m not exhausted, or that I can actually remember all the things I need to take care of without lists, notes and reminders from the people around me.

What it does mean is that the pain levels are at a 6 or below, and that I can lay down with the hot pads when I need to, or take a nap. Read the rest of this entry »

Posted in Chronic Illness, Fibro, Fibromyalgia, Invisible Illness, Opinion, Pain, Personal care | Tagged: , , , , , , , , , , , , , | 4 Comments »

Learning to Live with Pain – Being Proactive (Part 2)

Posted by wendyburnett on May 7, 2010


In my Sunday post, I promised you complementary/alternative methods you can try for pain and stress control/reduction, so here we go. These methods apply in all of the 4Ps, although they apply in different ways in different stages. Read the rest of this entry »

Posted in Alternative Treatments, Chronic Illness, coping skills, Fibro, Fibromyalgia, Invisible Illness, Opinion, Pain, Stress | Tagged: , , , , , , , , , , , , , , , , | Leave a Comment »

EFT and Tapping for Fibromyalgia – Do They Work?

Posted by wendyburnett on May 6, 2010


Does it work? Yes, and no . . . Like anything else, EFT (Emotional Freedom Techniques) has its benefits, but it is definitely not going to make your fibro go away completely. It does, however, help my symptoms and make my fibro easier to live with, so I’ve added it to the resources I use to help me cope. (Is this purely a placebo effect? I don’t really care. If I feel better, or have less pain, it’s worked for me, and I’m happy with that no matter what the mechanism is.)

I downloaded the free EFT manual from http://www.emofree.com and read the information provided, memorizing the steps needed to perform a treatment. The first symptom I tried it on was a migraine, and it worked pretty well. The first treatment eased the pain, Read the rest of this entry »

Posted in Alternative Treatments, Chronic Illness, coping skills, Fibro, Fibromyalgia, Invisible Illness, Opinion, Pain | Tagged: , , , , , , , , , , , , , | 1 Comment »

The May 4 ChronicBabe Blog Carnival Is Live

Posted by wendyburnett on May 5, 2010

Jenni has the Learning to Live With Pain Blog Carnival up . It’s a day late, but definitely NOT a dollar short, offering the perspectives of twenty-two amazing babes (and me) on how to live with chronic pain as a permanent unwelcome guest in your life. Check them out, maybe you’ll learn something that will help you or a loved one cope.

**If you are reading this post anywhere other than wendyburnett.wordpress.com it is because it has been stolen. Please click on the link provided to return to the site of origin.

Posted in Chronic Illness, Opinion, Pain | Tagged: , , , , , , , , | Leave a Comment »

Learning to Live with Pain – Being Proactive

Posted by wendyburnett on May 2, 2010

Out of suffering have emerged the strongest souls; the most massive characters are seared with scars.
Kahlil Gibran

Have you ever watched the Discovery Channel show “Mythbusters”? They do some really interesting stuff on there, and this past Wednesday (April 28th,) they tackled a pair of “myths” about pain:

  • Women have a higher pain tolerance than men. and
  • Cursing increases pain tolerance

It was pretty interesting. They set up a bowl of ice water that was kept at just above freezing (1 degree Celcius) and attached to a timer. They then tested an equal number of men and women, seeing how long each person could keep their hand submerged. The subjects were not told that the men and women were competing, and for the first test, they were not permitted to curse while their hand was submerged. Read the rest of this entry »

Posted in Alternative Treatments, Chronic Illness, coping skills, Fibro, Fibromyalgia, Invisible Illness, Opinion, Pain | Tagged: , , , , , , , , | 9 Comments »

Give Your Pain a V.O.I.C.E. (Verification of Illness, Coping & Experience)

Posted by wendyburnett on April 19, 2010

The University of North Florida is doing a new study, researching personal experiences with chronic illness, including those without a diagnosis yet. According to their website:

“Our goal is to document and share the collective voices of those who endure the challenges of living with chronic physical symptoms. We seek honest and candid responses in an online survey from patients who personally know about the impacts of living with symptoms of illness. Your voice is vital to providing awareness and understanding, and to help establish issues that we need to address in medicine. This research taps into information that lab work and other technologies cannot reveal, relying on input from you for the advancement of science and understanding. Read the rest of this entry »

Posted in Chronic Illness, Fibro, Fibromyalgia, Invisible Illness, Opinion, Pain, Research studies | Tagged: , , , , | 4 Comments »

8 Ways to Handle Unwanted Treatment Advice

Posted by wendyburnett on April 13, 2010


In yesterday’s post, I talked about the people in our lives who keep pushing us to try new treatments thinking that we’ll be “CURED,” and promised you a selection of methods to deal with them. As I said in that article, none of these methods are guaranteed to work with every “helpful” person in our lives. Just like us, each person will require their own combination of methods, and some won’t stop no matter what we try.

As annoying as it can be to deal with all the time, we have to remember that our illness has affected their lives as well, and handle the behavior as gently as possible. Read the rest of this entry »

Posted in Chronic Illness, coping skills, Fibro, Fibromyalgia, Health, Invisible Illness, Opinion, Stress | Tagged: , , , , , , | 7 Comments »

Eeeeek, the Internet is Down (and Other Random Bits)

Posted by wendyburnett on March 20, 2010

ACCCCCCCKKKKKKK!!!! We’re offline, and it’s kind of freaking me out. I can’t get online, but am I taking advantage of that to do any of the thousand things I need to be doing? Nope. I’m not washing dishes, or sleeping, or cleaning the bathroom, or any of that. Instead, I’m sitting here obsessing about all the things I CAN’T do.

Things like updating the blog, checking my email, catching up on Farmville . . . Hell, I can’t even do laundry until I’m back online because I’m out of laundry detergent and I can’t make any because the recipe is bookmarked on the puter, not written down. I’ll be fixing THAT as soon as we’re back online, too. SOME things should NOT depend on internet access.

Oh, that reminds me. I’ve found a wonderful way to reduce the amount of time and energy I spend on personal care, too. (Plus, it’s gonna save me a TON of cash!) I was reading “A Month Without Monsanto” the other day, and someone mentioned the “No-Poo” haircare method in one of the comments. I looked it up, and it sounded interesting, so I tried it the next day. I LOVE it. No shampoo, no conditioner; and my hair was still clean, soft, and shiny after 3 days. Read the rest of this entry »

Posted in Chronic Illness, coping skills, Fibro, Fibromyalgia, Health, Opinion, Pain, Personal care | Tagged: , , , , , , , , | 11 Comments »