Sick and Tired of Being Sick and Tired

Strategies and alternatives for coping with fibromyalgia, bipolar disorder and other chronic illnesses

Validation

Posted by wendyburnett on March 31, 2010


“Millions of individuals with chronic illnesses bear the extra burden of family, friends, coworkers, and even healthcare professionals who don’t believe these patients are ill because they don’t “look sick.””

That’s the first paragraph of an article in the Nov/Dec 2007 issue of “Social Work Today (Vol. 7 No. 6 P. 18) called “Invisible Illness — What You Can’t See Does Hurt Her” by Jennifer Sisk, MA.

It’s a great article, although the fact that it’s still as current as the day it was written makes me very sad. There are still so many who don’t believe that Fibromyalgia and CFS/ME are valid illnesses, both in the medical community and in our families. Articles like this give me hope that one day those of us with invisible chronic illnesses may be more generally accepted as blameless sufferers of PHYSICAL medical conditions.

**If you are reading this post anywhere other than wendyburnett.wordpress.com it is because it has been stolen. Please click on the link provided to return to the site of origin.

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4 Responses to “Validation”

  1. While individuals with visible illnesses—those requiring canes or wheelchairs or causing physical manifestations (e.g., hair lost from chemotherapy, tremors and speech irregularities from Parkinson’s disease)—do encounter sociocultural difficulties, their obvious medical conditions typically engender ready support and understanding from others.

    Really? What planet has she been living on?

    • LOL. Well, it is more common for people to offer help to those with OBVIOUS disabilities . . . However, it’s not a given, and there are many who treat even those in wheelchairs as though they are asking for “special treatment” when all they want is an EQUAL chance to participate.

  2. Whether a person looks sick, or doesn’t look sick, we seem to live in such a pressed, pressurized and self-absorbed society that we hardly take the time to even look at each other much less lend a hand. Ironically, there is extraordinary kindness in this “blind” online universe, where voices may simply speak to each other, and listen. Sight unseen.

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