Sick and Tired of Being Sick and Tired

Strategies and alternatives for coping with fibromyalgia, bipolar disorder and other chronic illnesses

Archive for January, 2010

Who Can You Trust with your Healthcare?

Posted by wendyburnett on January 29, 2010


Who can you trust with your health? For those who are healthy, that isn’t much of an issue. Almost any doctor is capable of treating a cold, a cut, or a sprained ankle without making you sicker. For those of us with chronic health issues, this is a more important question, whether we realize it or not.

I spent years assuming anyone with a medical degree could be trusted to do what was best for my health, Read the rest of this entry »

Posted in Chronic Illness, Health, Healthcare, Opinion | Tagged: , , , | 6 Comments »

FibroFLARE

Posted by wendyburnett on January 28, 2010


Flaring is a bitch. Not sometimes, but always. With fibromyalgia, being tired is a fact of life, no matter what you do; but during a flare it’s ten times worse. If you have fibro, you know exactly what I mean, but if you don’t, there’s no way you could possibly imagine what it feels like. The exhaustion is like trying to move through molasses up to your neck, and no matter how much you sleep, you never feel like you’ve slept at all. Read the rest of this entry »

Posted in Chronic Illness, Fibro, Fibromyalgia, Health, Invisible Illness | Tagged: , , , , | 3 Comments »

Is it Boredom, or Is it Depression?

Posted by wendyburnett on January 18, 2010


Do you ever find yourself staring into the computer, irritated because none of your friends are available to “talk,” saying “I’m so bored” even though you have a thousand things you could be doing? I have a list as long as my arm of things I WANT to get done, things I enjoy doing as well as those that just NEED to be taken care of, and I can’t pry myself away from the computer.

I’ve been sitting here for 30 minutes, flipping from Twitter to Facebook to IRC to my email, then on to the blogs I follow; but before you say I’m addicted to social networking you should know that I frequently go for days without checking any of those (well, except for Facebook. I will admit that I AM addicted to one of the FB games called Farmville, but today even THAT is boring.)

On days that I’m not “bored” I spend most of my time doing the “have to’s” and popping onto the computer, reading, writing, or resting in between. Today, even books don’t tempt me, nor does researching any of the many writing projects I’m working on. This is a very bad sign, Read the rest of this entry »

Posted in Alternative Treatments, Fibro, Fibromyalgia, Invisible Illness | Tagged: , , , | 6 Comments »

Guilt and Chronic Illness

Posted by wendyburnett on January 16, 2010


“Guilt: the gift that keeps on giving.” – Erma Bombeck

I feel guilty all the time – guilty that I’m not able to do all the things I used to, guilty that I can’t work more, guilty that I had to quit the good job that provided the majority of our support, guilty that we lost the house and the car and most of our belongings as a result, guilty that my husband has to continue working at a job he hates so that we can barely scrape by . . . It makes no sense, because I didn’t decide to get sick, but I even feel guilty for HAVING a chronic illness in the first place.

My husband also feels a lot of guilt – he feels guilty that he “can’t take better care of me.” (His words, not mine.) That covers a lot of ground for him. He feels guilty when I come home from work in pain because he thinks that if he made more money I wouldn’t have to work. He feels guilty about losing his job when I got too sick to work, and not being able to find another one for so long, because he thinks that if he’d been working maybe we wouldn’t have lost so much. He never complains about all the things I can’t do, and he never mentions it when my inability to do something irritates him or makes him angry, but he feels guilty about having those feelings anyway. He doesn’t understand that “knowing” I was sick when we got together didn’t equal “understanding” what it would be like for him when I had a flare, or how it would affect him emotionally.

Guilt is a HUGE issue for anyone with a chronic illness, but we rarely realize that it is just as much an issue for those who love and support us. Read the rest of this entry »

Posted in Bipolar Disorder, Chronic Illness, Fibro, Fibromyalgia, Health, Invisible Illness | Tagged: , , , | 2 Comments »

Managing Your Healthcare Team, Part I

Posted by wendyburnett on January 9, 2010


Living with chronic illnesses affects us in so many ways that it’s really impossible to even list them all. Each of us lives within our own little universe of illnesses, symptoms, and needs. The one thing that is the same for every one of us; no matter which diseases, syndromes, or disorders we have; is the need for medical treatment in some form.

Because we frequently have multiple illnesses which affect different parts of our bodies, we may need to see an array of specialists on a regular basis. This quite often causes major complications in our treatment, since many doctors try to treat in a vacuum, ignoring the effect of their medications and recommended procedures on any disorder that is not part of their specialty. Read the rest of this entry »

Posted in Bipolar Disorder, Chronic Illness, Health, Healthcare, Prescription medication | Tagged: , , , | Leave a Comment »

Big Pharma and Chronic Illness

Posted by wendyburnett on January 8, 2010

Do the big pharmaceutical companies want us to get well?


I’ve been thinking about this issue for a long time, and I wonder, do the drug companies really want me to get well? If they found a cure for fibromyalgia, diabetes, bipolar disorder or any of the other myriad of chronic diseases out there, what would happen to their bottom line? Read the rest of this entry »

Posted in Bipolar Disorder, Chronic Illness, Health, Opinion, Prescription medication | Tagged: , , , | Leave a Comment »

The Placebo Effect: Do We Care Why it Works, as Long as it Does?

Posted by wendyburnett on January 7, 2010

Placebo (definition) – any dummy medical treatment; originally, a medicinal preparation having no specific pharmacological activity against the patient’s illness or complaint given solely for the psychophysiological effects of the treatment; more recently, a dummy treatment administered to the control group in a controlled clinical trial in order that the specific and nonspecific effects of the experimental treatment can be distinguished.

Placebo Effect – any effect that seems to be a consequence of taking a placebo, the change is usually beneficial and is assumed to result from the person’s faith in the treatment or preconceptions about what the substance was supposed to do.

I have a question for you. If you have migraines 3 times a week and start taking feverfew capsules to prevent them, do you REALLY care whether the reduction is caused by the feverfew or the placebo effect if you start only having one a month? If it works, does it matter WHY it works? Read the rest of this entry »

Posted in Alternative Treatments, Fibro, Fibromyalgia, Invisible Illness, Opinion | 4 Comments »